Below are the five questions. Here goes...... afterwards I will tell you a bit about some weird D stuff that is happening to me. Remember the weird hypos after lunch, well now my insulin to carb ratio seems to have jumped -UPWARDS! I have no idea why!
Here are the questions. Thanks Vivian for sending them! Hug to you and Daniel and your blue bear - to all of you! Hope Daniel's pumping is going along smoothly !
1. Who has been the most influential person in your life and in what way?
This question was a "piece of cake"! My husband Per, no question about it! We are a team, we have always discussed everything. We basicly are very much alike so disagreements are usually about dum stuff. Most of the important stuff we agree on. The little stuff can still cause big arguments and slammed doors and....... still, we have a very good marriage. Where we live, now in Belgium, is because that is where Per was offered an interesting job. I in fact pushed Per into applying for the position. We had two years previously moved from the center of Stockholm out to the country, a 45 minutes car ride from Stockholm. Per had agreed to this because I was fed up with living in the city. He didn't really enjoy this move, but later he came to love the house too! My kids were "leaving home" and I just could not see myself forever working my but off (for terrible pay and no recognition of the good job I was doing). I stopped and figured out what I wanted. Rather less money and the freedom of managing my diabetes better and planning my day as I wanted. Money was definitely short after this move, and we found that renovating a house was much harder than planned and cost much more than planned. Renovation went very slowly! Per had to commute every day into the city. He did that for me. There I was, happy, out in the country, and THEN he was asked to apply for this job in Belgium. REALLY, I wasn't happy, but if he just never applied we would always wonder what we had missed. I can return to Sweden and the countryside later. I have so many more experiences so I too have only gained from our moving to Belgium. But I LOVE Sweden. What else - if Per is grumpy or sad, well then I really cannot be happy either. That is just the way it is. My big problem with Per is that he has difficulty talking about problems....... So I go around in a fog guessing/wondering what is the problem now? It is the "men are from Mars and women from Venus thing"!
2. Has there been a single event in your lifetime that made you think absolutely anything is now possible? If so, what was it?
I have a slight suspicion I am analyzing this question too much - but I reason sort of backwards, like this: there are tons of things that ARE impossible! I cannot get my diabetes right. They cannot find a cure to diabetes NOW. War cannot be stopped. People go on starving. So anything is NOT possible, and thus no single event has made me think that anything is possible!
If you mean that something marvelous has happened that makes me thus think that other marvelous things could happen - well I am very happy that I have produced two healthy kids and I AM very proud of them. However this has nothing to do with preventing wars or famine or making people stop being so dam egocentric. Back when I had my kids I really didn't know if it was possible. You know "Steel Magnolias" was very real in my mind!
3. If you were Omnipotent for one day, what would you change in the world?
If I were really omnipotent I would stop all war and famine and sickness FOREVER! I would make people super intelligent so that we would figure out the solutions to the new problems that would inevitably arise. Last but not least, I would make people always act with empathy and kindness. ALWAYS.
George also gotten the following two questions, and I have NOT taken a peek at how he has replied!
4. Name the characteristics you think make a person worthy of being remembered for generations?
People are a mixture of good and bad. I would never single out a "famous person" to be remembered. The good qualities and the bad qualities are in all of us. It is the little things that count. Honesty, sincerity, empathy, kindness - these are the qualities in all people that make them worthy of remembrance. An artist, an author, a teacher or anybody that shows us the beauty of the world around us, that shakes us up and makes us appreciate what we already have, is worthy of remembrance. The bad qualities in these same people also exist and cannot, should not, be denied. If you pretend that these people are perfect, then everything becomes a big fat lie. Dishonesty destroys what is good.
5. Name two things about yourself that you love and then name two things you would like to be able to add to that list.
I cannot see things in black and white. I am always trying to understand what made someone do what he did. So even if you dislike a certain behavior, you can understand what caused it and sort of accept what has happened. I like this quality in myself. A second quality that I like in myself is that "I CARE". I get involved. I am rarely indifferent to anything. This makes me do a job well. It pushes me to improve myself. Wishing for things is very scary - you get more than you bargained for. Still I think I would like to have better control over my body. What I mean is like a dancer is able to beautifully move his body. I would like to be able to move myself more gracefully, be better at sports, know where my foot was going, be better coordinated. Lastly, I would like to be better at mechanical things. If I look at a machine I haven't the faintest idea of how to change the battery. If I try and open it, well I will often fail or push too hard and break it. So I would like to be more mechanically oriented.
Remember how I said in a recent blog entry that I was having terrible hypos after lunch, and they could not be explained by food, exercise, insulin or stress? Well the hypos have disappeared. Now I need more insulin for the same food. Exercise is unchanged! Before I use to take 2.5U for three slices of wholewheat bread with peanut butter and iceburg lettuce and fresh spinach for breakfast. Now I take 3U and only eat two slices of bread with the peanutbutter and lettuce and spinach. For only two slices of bread I should need only 2/3x2.5= 1.7 units of insulin. Thus i have an increase of 3-1.7= 1.3 units. For lunch I eat 4 slices of the same bread with lettuce and spinach and peanut butter. I use to take 5 units, 60% immediately and the rest spread over 2 hours. I am currently taking 7units, 60% immediately and the remaining spread over 2.5hours. I have removed 0.7U from the basal after lunch which really covered part of my lunch, but nevertheless 7-5-0.7 = an increase of 1.3 units, for no reason what-so-ever! The increased need for insulin to cover food (1.3 units at breakfast and 1.3 units at lunch) maybe seems small, but remember my basal is only 5.2units for the whole day! I don't understand why this change has suddenly occurred. Is it because of the stupid ketones I always have? Is it because I maybe have lost 1-2 kilos in weight? If you loose weight, the same quantity of food will increase you blood sugar more than before. Can only 1-2 kilos do that ? Think if I understood! I hate not understanding. I have had blood tests to see if we can find some explanation, some problem, but nothing was discovered. I have been tired, not my usual peppy self - that is all I can say. The whole thing kind of worries me. However i feel less dpressed since I am now preventing the highs that began to occur after my meals! First hypos then hypers...... Nothing stays the same!
I was told by my endo that you can calculate your LDL if you know your HDL, tryiglycerides and total cholesterol. You can only make this calculation if your triglycerides are low, which mine are. Now after decreasing my 10mg lipitor to 5mg per day my LDL has increased from 15 to 31, my HDL has decreased from 134 to 85. Triglycerides have increased from 44 to 51. My total cholesterol has decreased from 157 to 126. My endo STILL thinks I should continue to take the 5mg because statins have other microvascular benefits beyond improving cholesterol numbers. She said there was no way of measuring these other microvascular benefits. That is for those of you interested in cholesterol numbers. The C of the ABCs of diabetes care!
TOODLES.
Tuesday, April 17, 2007
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15 comments:
Hi Chrissie,
Thanks for stopping by my blog.You are my inspiration 45yrs with diabetes wow.
Chrissie,
I love your answers. Your relationship with Per sounds a lot like my husband and I. It is a give and take all the way, teamwork is the only way to go.
I admire how inquisitive you are and how you dig until you get an explanation. I am interested to see if you find what is causing the ketones and weight loss along with the tired feeling. Does your endo seem very concerned?
Chrissie,
THanks for the insigts via these questions. You are so thoughtful in your responses. I also appreciate your response on my blog tothe question, "WHat have you done for YOU lately?"
My favorite treat to myself is laying in my hammock and watching the clouds go by. Sometimes the simplest things can provide so much pleasure. We should stop and enjoy them!
Warmly,
Wendy
Hi Adjoa I have been reading your blog for quite some time and I am happy that you left a comment here. Comments mean a LOT to me. Each diabetic is different, but pumping sure helped me! You said you were very sensitive to insulin, like I am! Usually this is considered good, but it is also a pain because teeny changes make big differences. What is your TDD?
Vivian, I had an appointment with my diabetic endo and in answer to your question I HONESTLY don't think he gives a dam about how I am feeling. That is to put it bluntly! They do not understand the ketones and as far as he is concerned if my HbA1c is good - then there is nothing to talk about! He in no way advises me on my daily management of D. He never even asks to see my daily records! NOTHING! I thought I would take the opportunity to discuss with him what he thought of all the new exciting stuff related to a possible diabetic cure. I named Faustman's work, the lack of C-peptides in current insulins, the progress made in Brazil with our own stem cells and the new work using transplants of porcine beta cells in humans in New Zealand. I got ZERO feedback! He said he didn't believe in ANY of these projects!!!!! Talk about encouraging! I asked him if he could explain what could have caused those repeated unexplainable hypos after lunch in the middle of March. He had no idea. He told me stop wondering why, just fix the problem. I told him of course that is what I was trying to do and it was rather difficult to judge how fast to make changes..... He really didn't ewplain anything except to say that he thought that my current increased need for insulin will probably disappear and my levels would go back to the way they were. When? - that he couldn't say! I guess you could say I went to the meeting to get my pump supplies. I asked for 30 cartridges to last until my next meeting and even that they counted wrong. I had to go back and get 5 more! I am telling you Vivian I guess I would change doctors if I thought I could find a better one. I am pessimistic and just think it is impossible. Diabetes is what it is and you have to deal with it yourself.
Oh , hi Wendy, we are writing at exactly the same moment! Well the sun actually never came out today here in Brussels - maybe tomorrow! After my endo appointment this afternoon,I need to spoil myself a bit - as you suggested in your last blog post. The crummy endo didn't even bother to compliment me on my HbA1c! He had to say it should be HIGHER. NEVER SATISFIED!
Chrissie, Per is a gem! You two are lucky to have each other.
I am sooooooooooodamn tired of having to keep reminding doctors to get things straight, of having to be our own advocate all of the time. Major suckage.
Research Blog on Diabetes and Lifestyle
We at The Patient Connection are currently running a research blog or online discussion on the subject of diabetes and the lifestyle of diabetics
In particular we are interested in your experience of genetic counseling or those of family members
We would love it if you could share your story or just post useful resources for fellow sufferers.
If you would like to join us please go to
http://www.thepatientconnections.com/blog.asp?uid=33
Thanks and remember your opinion counts
Best wishes
Belinda
The Patient Connection
Belinda.shale@thepatientconnections.com
Chrissie, I am so sorry that you have such an uncaring doctor. It is just wrong. Our endo is really sweet with Daniel but at the same time there is a lot we disagree with in her method of treatment. The nurse practitioner was trained more closely to the way we were trained in our original clinic and we always seem to be on the same page, she actually takes time to talk about the concerns, I love that. It does seem that for the most part diabetes is definitely a self serve disease.
Well Vivian your nurse practitioner seems to be great, so it is great that you have her! I chuckled with your remark "she ACTUALLY takes time to talk about (our) concerns", and I definitely agree that diabetes has to be, for the most part, a "self service disease". Why is that? My opinion is that this is necessary since diabetics react very differently to the same treatment, diabetes is very time-consuming and this is the only realistic approach given todays "stretched" (money and time)health care resouces. However, I do think a medical team SHOULD take the time to help us when we ask for help! Unfortunately this isn't always true. I remember getting excellent care every time I was treated at Joslin, but this was many years ago. Hopefully, this is still true. Let's be realistic, care is going to vary and thus it is up to the diabetic to seek good care. I have actually already done this several times in Belgium, and this is the best I have found! I don't know quite what to think. AGAIN I question myself and use my past experiences to reach a judgement. I wish I could be more optimistic. Vivian, what we are discussing here is a very important issue for all diabetics. I think it is a sad state of affairs! Sometimes I consider putting this a question to our readers - but where does it lead?
Yeah Kathy you are right in all respects. I think it sucks big time that this doctor/professor always is quick to say"This is NOT a diabetic issue. Talk to somebody else!" I wrote in fact a letter to the direction of the hospital a year ago to try and straighten out my concerns. I wanted to improve the situation. Although we had a meeting to discuss the matter, it led nowhere. Maybe THAT is why he perhaps dislikes me? Also, see my comment to Vivian.
Patient Connection, please inform your members of my blog and I promise to check out your link!
Hi Chrissie,
Since I started counting fellow D-bloggers I've met, its not outside the realm of possibility that we'll meet in person someday ... assuming, of course, you happen to return to Sweden (I'd love to visit Belgium, too, but we Americans do not have as much holiday/vacation time, so I need to budget mine carefully).
Chrissie
Sorry I have to skip on the questions.
You might be interested in a book that I read last week on holidays. It's a challenging one. Joan Didion is the author and the book is The Year of Magical Thinking.
It's about what she goes through in the year after her husband dies suddenly. A very, very interesting read. I'm thinking of reading it again, immediately.
Scott, we visit Sweden frequently - so please send me an email and we could maybe arrange to meet. That would be fun.
Bernard, I checked out Joan Didions book on B&N - but tell me, the book sounds terribly horrible and kind of melodramatic. She looses her husband and her daughter is very ill. Is there ANY lightness in the book?
Where have you been? Off traveling the world, I suppose!
Miss hearing from you!
Chrissie
It's a tough book. But in reading it, I think it would help prepare for the type of grief that would be experienced if a loved one died.
I'm not being morbid here. I think that Joan Didion does an excellent job of explaining how she thinks during that year. And it's a very difficult year for her.
This is definitely not a book for everyone - but I see it as having a lot of value.
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